Na keiki o ka mahina

ʻO ka lā ko lākou ʻenemi ikaika loa. Me Xeroderma Pigmentosum, kahi maʻi maʻi aneʻaneʻane, pono lākou e holo i kā lākou āpau me ka UV. ʻO ka hōʻeha waiho ʻana ma laila

I waho, e ninini ana i ka ua. He ua anu a me ka hoʻoilo a ke kauwela wela e ninini ai i ka lani aniani, a hiki ke hōʻike ʻia e like me ke ʻano he nui inā ʻaʻole kekahi i waena o ʻAukake ma Montluel, kauhale liʻiliʻi i ka ʻāina ʻo Auvergne-Rhône-Alpes . He mau hola ʻo 19, piʻi ka lā, akā naʻe, ʻoiai nā ao, ke hōʻike mau nei ka dosimeter i kahi index UV kiʻekiʻe. ʻO Noa, ka mea i hoʻopau i ka lā ma kahi pale, ma lalo o nā kukui diode-kukui e hoʻoponopono i kona pale. Ma hope o ʻeono mau makahiki o ka hoʻomaʻamaʻa, ʻaʻole i hōʻea e ke kaikamahine i ka manawa mua. Hāʻawi kona mau aniani i ka puka aniani anti-UV e pale aku ana i kona helehelena, aʻo ka mea i paʻa kona lima ma hope o kāna ʻāʻī. Hāʻawi kekahi kanaka makua i ke kōkua. Hōʻike aku ke keiki o 10 mau makahiki me ka wiwo ʻole: "Aloha ʻoe, ʻo ia wale nō kaʻu mea i kuhi hewa ʻole ʻia. Ua noho ʻia ʻo ia! ʻO ka mea "e nīnau ʻia" i kēia pāpale hiki ʻole e hōʻole ʻia e ka ʻukalona, ​​me ka hiʻi kulu o ka pahuhopu ma luna o kahi pā, a ma ke kua o ka ʻāʻī, kahi pālua no ʻelua mau pā leʻa ʻelua. Ke kau nei ʻo Noa i nā kāʻei ʻelua o nā lole a me nā lole. Hoʻoponopono maikaʻi ʻia nā mea a pau. Mālama ʻia kēia lole lole luhi, hiki iā ia ke holo i waho i ka ua. Makemake ʻo ia e noho i nā wāwae a hoʻolele i kona mau lima a paʻa i ka lewa.

Mai ʻohi ʻia ʻo Amine. Ka nui o kona mau maka, ke kīkē ʻia nei e ka conjunctivitis, i ʻū a me ka mai iki o ka lā

ʻO Noa kahi "keiki a ka mahina", kahi inoa maikaʻi no nā keiki me xeroderma pigmentosum (XP), kahi maʻi keiki keiki makua ʻaʻole e hōʻeha i ka mea i hoʻopili ʻia me ka mālamalama ultraviolet. ʻO Amine kekahi. Aia ʻo Noa, pelu a ʻakaʻaka ʻo ia i hope o kāna pāpale poʻo. ʻOiai ka mea e kani ai ka puhikū i kāna wāwae, hoʻāʻo ke keiki e loaʻa i ka lewa i ka ʻaoʻao. ʻO kahi kahi hōʻike. "Pono ʻoe e kiaʻi iā ia," wahi a Hamid kona makua kāne. ʻAe mau poʻina ʻo Amine i ka pau ʻana o ka lā. He 9 mau makahiki ʻo Amine, akā ua hala ka hala o ke nānā ʻole iā ia, no nā keiki he ʻumikūmāiwa i kēia kahua hoʻomaha hoʻomaha, i hoʻonohonoho ʻia e ka hui ʻo Les Enfants de la Lune * . ʻO Amine ua 4 mau makahiki i kona wā i loaʻa ai i ka maʻi maʻi. "Ua hiki iā mākou ke ʻōlelo" wale "a" ʻole "4 mau makahiki, ʻo ia he mau makahiki he nui i ka ʻike i ka māmā a me ka kūkākūkā ma waena o nā pediatrician a me nā dermatos pale ʻole, e wehewehe i kona makuakāne. Mai ʻohi ʻia ʻo Amine. Ua hāhaʻi ʻia kona mau maka i hoʻohui ʻia i ka conjunctivitis me ka maka iki o ka la, a ua haki ʻia kona maka me nā ʻalā. Ke haʻi wale nei nā kauka iā mākou e hoʻokomo i ka lā aniani a me nā aniani i loaʻa iā ia. A hiki i kēia lā o Mei 2014 kahi i kau ai ke kauka o ka Halemahau Necker i ka maʻi weliweli: "ʻAʻole ʻike hou kāu keiki. "

Hoʻokaʻawale ʻole mai nā mea pilikia, ʻo Ana, ʻo 3 mau makahiki, e wehe i ka maka o ka ʻāina hoʻonaʻauao o Bonnefamille (Isère).
Hoʻokaʻawale ʻole ia mai kekahi mea e alo aku ai, ʻo Ana, 3, ke kiʻina i ka maka o ka ʻāina hoʻonaʻauao o Bonnefamille (Isère) © Alvaro Canovas / Paris match

ʻO ka haʻalulu mea hoʻohālikelike. E hoʻomanaʻo ka ʻohana āpau i ka manawa a lākou e ʻike ai ma ka hopena o ka haukapila, ke kū nei, hāʻawi ʻia i kahi lā banal a me nā ʻōlelo aʻo, me ka pīhoihoi ʻana i ka ʻike o ka wā e hiki mai ana, ʻo kahi hopohopo nui: ʻoi loa kahi ola ma kahi o i kēia manawa, pono ia e kali i ka pō ke hiki i kāna keiki ke hele aku me ka ʻole o ka pale i nā leʻaleʻa maʻalahi, e like me ka holo ʻana i loko o kahi māla. ʻAʻole wale ka lā e pono ke ʻalo ʻia, akā kekahi kumu o ka mālamalama e hana ana i nā UV, me nā kukui ʻē aʻe. I ka lā like, pono ʻoe e uhi i ka puka makani o ke kaʻa, hoʻololi i ke kukui kīlohelohe, kūʻai i nā kānana, nā kukui kukui, nā pale pale blackout. A ma luna o nā mea a pau, hōʻoia hou i ke keiki ua heʻe wale i nā mea āpau a pau. ʻO Wafa Chaabi, ka makuahine o Noa, he pelekikena o ka hui o Les Enfants de la Lune. Ua ʻike ʻo ia i kēia ʻano panal a me ka pīhoihoi i nā wā mua: "A hāʻule kahi maʻi, hele ka hui ma luna e lawe. Ke hele nei au me nā mea lako a me koʻu mau makahiki o koʻu ʻike. Ma mua, hana nā ʻohana i kā lākou mea ponoʻī. Ua kau lākou i nā kūlou ski i kā lāua keiki, ua kāwele i ka pā a puni a uhi ʻia me ka lole. Ua pani wale nā ​​poʻe ʻē aʻe i kā lākou mau kia paʻa a hoʻomaka i ka pōʻeleʻele. I kēia mau lā, ʻoi aku mākou i holo maikaʻi. Aʻo aku mākou i nā mākua e hoʻololi a hōʻili hou. "Ma nā hale ʻāina i hoʻolimalima ʻia e ka keʻena, nā mākua a me nā keiki XP o Farani e hui i ka hebedoma i hoʻokahi aʻehā quirky: eia hoʻi, ʻo ka lā kahi e kūʻe ai i nā hana kī. Eia naʻe, ua mālama pono ʻia ka hale kaiāulu nui. Ua hele mai nā mea kōkua mai ka ahahui i kekahi mau lā ma mua o ka kilo o nā mea ʻeleʻele, nā kānana, nā pale, a me kekahi mau kenimika UV. Nānā: e uhi i ka hapa kenimika liʻiliʻi o ka mālamalama ultraviolet, e hoʻhewahewa i nā ʻāpana hiki ʻole ke pale ʻia, e kau ma luna o nā ʻaoʻao o ka ʻāina e pono ʻole ʻia e ke kaʻina ʻana o nā puka, e hoʻopili i nā hōʻailona hoʻomanaʻo a hoʻopaʻa i nā ʻōpala o nā ʻeke ʻōpala i nā skylights .

Ma ka paka o ka waihona o Saulsaie (Ain), ʻAukake 9. ʻAʻole loaʻa i kahi keiki nā makana ka ʻili o nā ʻili. Nui nā mau aniani. ʻO ka maʻi ka mea e pilikia ai nā maka.
Ma ka paka o ka waihona o Saulsaie (Ain), ʻAukake 9. ʻAʻole loaʻa i kahi keiki nā makana ka ʻili o nā ʻili. Nui nā mau aniani. Hoʻopilikia ka maʻi maʻi i ka pani ʻana i nā maka © Alvaro Canovas / Palapala Kūʻai

ʻAʻole i mamao loa mai ka puka komo, ʻo Olympe, 10 mau makahiki, ke kali nei i ka hoʻomaka no ka pō ma ke kikowaena o ka wai. Ua hiki koke nō 19 h 30; i waho, he lā nui mau. No laila, ma mua o ke puka ʻana i waho, ʻo Olympe, i uhi ʻia mai ke poʻo a i ke kuʻekuʻe, e kau mālū ana ma luna o kona wahi pale. E like me ka pale. Pau ana ke ola, a ʻike ke kaikamahine liʻiliʻi i ke kaʻina hana. Aia ma ka hoʻomakaʻana o kona makuahine, ʻo Emilie Giret, ua hoʻokumu ʻia ke kaao kaulana i hoʻololi i nā ola o nā keiki he mau haneli. Ma 2011, kēia kumu aʻo i ka hoʻokele haʻuki ma ke Kulanui o Poitiers i hoʻolaʻa i nā kumu kula a me nā haumāna i ka noiʻi ʻana i ka "sport with disabilities" i mea e hana ai ka UV prototype a me anti-fog, ventilated, impeccable design . "He liʻiliʻi liʻiliʻi i uhi ʻia i kā mākou mau keiki i ka neʻe ʻana, koe wale nō kahi lole keʻokeʻo, i hana ʻia e NASA, kahi mākou i kau ai i ka mask ski. Ke ʻano like nei lākou me he mea hanu lā, he puʻuwai ʻē loa. Ua lōʻihi ka manawa o ka laʻina, a ʻo ka hana hōʻoia i nā kūlana o ʻEulopa i ka mau makahiki ʻekolu, "i ʻōlelo ai ia. Hoʻomaopopo ʻia ma 2014, hana ʻia ke pāpale ma Vienna i kēia manawa ua hoʻohana ʻia i ka honua holoʻokoʻa.

Hele mākou i ka lā hoʻomaha ma Morocco me nā kānana, nā mea hana, a me ka dosimeter

Ki waho waho, hoʻomehana liʻiliʻi a ka lā; mākaukau mākaukau ka pahi. ʻO ka lima ʻo Dosimeter i loko o ka lima, nānā kekahi mau mākua i loko o ke kaʻa. Aia kekahi pilikia hope e hoʻoponopono ai: ua uhi pono nā hāpau i nā pale mānoanoa, akā he skylight kikoʻī e hiki nō i kekahi UV. ʻO kahi pēpē ʻōpala e hana i ka hoʻopunipuni. ʻO ka papa aku i loko, ua hoʻolako ʻia me nā puka aniani anti-UV nui. ʻO kahi paona no nā keiki, kahi e hiki ai ke hana i mua o ka hāʻule ʻana o ka lā. ʻO ka lā ma mua, ʻaʻole ia a hiki i 21 h 15 e hele pony. E pāʻani me ka ʻole o ka pale i ke kūlohelohe, ʻae ʻia ka mahina o ka mahina. Aia nā alemanaka Led a me nā wahi nui, i lawe ʻia e Naima a me Lakhdar. Nā mākua o nā keiki ʻekolu, me kahi Delia liʻiliʻi, ʻoki 6 a maʻi aku i ʻelima mau makahiki i hala aku nei, ua makemake lākou - e like me nā ʻohana ʻē aʻe - ua kau lākou i ko lākou manaʻo a hoʻolilo pū i ko lākou ikaika āpau i lilo ʻole ai kā lākou kaikamahine i kekahi. like. "Hele mākou i ka hoʻomaha ma Morocco me nā kānana, nā mea hana, a me ka dosimeter, ʻaʻole hele i ka X-ray i ka wā mālama loiloi ... Pono e hoʻolalelale i nā mea a pau, e kamaʻilio me ka luna hoʻomalu o ke kahua, e hoʻolako i kahi ʻōlelo a ke kauka, wahi a Naima. He huakaʻi ka huakaʻi hele, akā he mea nui ia iā mākou. Makemake mākou e lawe iā Delia i ke kahakai o ke kai, i ke kahakai, i ʻike ai ʻo ia i ka nānā ʻana o ke one ma lalo o nā wāwae, ua koʻo iā ia, ke ʻike ʻo ia i ka ʻono o ka wai paʻakai. Hoʻokomo mākou i nā wahi a i noʻonoʻo aʻe mākou i ke ao. I ka home, he like ia: ʻo ka māla i kekahi manawa i hāʻī ʻia e like me kahi keʻena pôpeku! I ke ahiahi, ʻaʻohe o ka pale, hiki iā ia ke ʻōlohelohe i ka mauʻu, manaʻo i ka makani ma kona pāpālina, pākuʻi i ka honua, leʻaleʻa me nā popo, hanu i ka honi o nā pua. Me nā keiki o ka Pōhaku, nā mea liʻiliʻi ma ke ola e like me ka lanakila.

ʻAʻole pale kēia mau pale maka i kā lākou mau ʻakaʻaka. Kūkala ʻia e kahi hui mai Ke Kulanui o Poitiers, ke kumukūʻai lākou ma ka 1 000 euro ma kēlā me kēia.
ʻAʻole pale kēia mau pale maka i kā lākou mau ʻakaʻaka. Hoʻomaka ʻia e ka hui mai ke Kulanui o Poitiers, ua holo ke kumukūʻai e pili ana i 1 000 euro. © Alvaro Canovas / Paris match

I ka wā koloni, ua hoʻonohonoho pono nā mea hana me nā kauka loea. Ua hana ʻo Alain Taieb, ke kākāʻōlelo o dermatology ma ka Hale Hōʻikeʻike o Bordeaux University, i ka huakaʻi hele e hālāwai me lākou. "Inā palekana nā keiki," wahi a ia, "hiki iā mākou ke hoʻokokoke a hiki i kahi kūlana ola maʻamau. Akā i kēia manawa, hiki mai ia. ʻElua mau kaikunāne, ʻo Thomas lāua ʻo Vincent Seris, nā mea maʻi mua o xeroderma pigmentosum i pale ʻole loa i ka radiation UV. Ua hōʻole aku kā lākou mau mākua, nā mea hoʻokumu o nā hui o nā keiki o ka mahina, i ka make o nā kauka nāna, i ka pau ʻana o nā makahiki 1990, e ʻōlelo iā lākou e hoʻokuʻu iā lākou i ka ola maʻamau ma mua o ka hopena hiki ʻole i ka makahiki 10 a i ʻole 15 mau makahiki. . ʻO Thomas lāua ʻo Vincent i kēia lā 26. Ua kūleʻa lākou i ke aʻo ʻana a alakaʻi i ko lākou ola ma ke ʻano ʻōpio, kahi mamao loa mai UV. Akā ʻaʻole lawa ka hindsight e hōʻoia piha i nā mākua. Ua hōʻoia ka makuakāne ʻo Little Amine i kāna ʻeha a hoʻopiʻi, hoʻoneʻe, ʻo ia wale nō kāna keiki ʻo ia iho i ka manawa e hoʻohālikelike ai i kāna mau makaʻu. ʻAau ʻulea ʻo Amine i ka ua. Ua maopopo iā ia: ma hope mai, e lilo ana ʻo ia i mana mokulele.
* enfantsdelalune.org.

kahi: https: //www.parismatch.com/Actu/Societe/Les-enfants-de-la-lune-1643301