"Aloha au i kēia kino." He wahine i hānau ʻia me nā wāwae ʻole e ʻōlelo ʻia ʻaʻole e hiki iā ia ke hauʻoli me kona ola a me kona helehelena

ʻAʻole loa ka hewa o kekahi ke hānau ʻia kekahi me ka maʻi kīnā ʻole. Akā, ua hoʻonohonoho ʻia kēia ao i kahi ala iʻike pinepine ʻia ai nā mea maʻi me ka hōʻeha a hōʻeha paha i ko lākou helehelena.

Akā, ua hoʻokō kekahi i ka lanakila i kēia stereotype a ola i ko lākou ola i piha. ʻO Chassidy Young, kahi i hānau ʻia me ka maʻi tetra-amelie, kahi hoʻohālike.

He aha ka maʻi tetra-amelie?

ʻOi aku ka ʻike ʻia o ka autosomal recessive tetra-amelia, ʻo kēia ʻano kahi maʻi o ka congenital kahi i loaʻa ai i ka waiho ʻole ʻana o nā wāwae āpau.

Hoʻopilikia kēia maʻi genetic e nā mutations i ka gen WNT3 a i komo pū kekahi mau wahi o ke kino.

Chassidy: hānau ʻia

Inā makemake ka poʻe e inaina i kona ola, ʻo ia ʻo Chassidy Young no ka mea ua hānau ʻia ka wahine ʻōpiopio ʻaʻohe ona mau lālā ʻehā. Eia naʻe, ua ʻōlelo ʻo ia ke ola ʻo ia i ka maikaʻi loa o nā ola!

"ʻAʻole au i ʻike i ka hana inā e ala wau i ka lā ʻapōpō, ma kahi kino maʻamau me nā lima - hōʻoluʻolu maoli au i ka ʻoluʻolu iaʻu iho."

ʻOiai ʻo kona kūlana, ʻōlelo ʻo Chassidy i ʻoluʻolu loa i kona kino akā ke ʻōlelo nei ke kaikamahine ʻōpio ʻo 32 i ka ulu ʻana o ka ulu ʻana ʻaʻole ia he mea leʻaleʻa no ka mea ua hoʻomāʻule mau ʻia ʻo ia no kona ʻano.

ʻLelo ʻia ʻo ia i ka papa helu ʻeono, he ʻāpana ʻo ia i kahi hui hulahula a ua hoʻokūkū hoʻi. Akā, ʻoiai ua ʻike ʻo Chassidy i ka helu, ʻaʻole i ʻae ʻia ʻo ia e hele pū me lākou no ka mea i manaʻo ʻia ʻaʻole ʻaʻole hiki iā ia ke hana.

Hoʻomanaʻo ʻo ia i ka uwē ʻana ia lā a ua maopopo ʻo ia he ʻano ʻē.

ʻO ka mea pōmaikaʻi, no kāna ʻohana, ʻaʻole i hoʻowahāwahā kēia hōʻino ʻiliʻelima i ka manaʻo ʻana o ke kaikamahine liʻiliʻi i ia manawa. ʻAʻole i mālama maoli ʻia kona ʻohana iā ia e koi aku i ka hana o ke kamaliʻi e like me nā poʻe ʻē aʻe.

Ua mālama ʻo ia i ka hale hana, hele i kēlā me kēia manawa e makemake ai ʻo ia, a hana pono i nā mea āpau.

ʻOiai makemake ʻo Cassidy i ka kūʻokoʻa, ʻaʻole hiki iā ia ke hana i nā mea āpau wale. ʻO kēia kahi e hele aku ai kona kaikuahine ʻo Ashley a me kāna hoaaloha kahiko ʻo Candace.

ʻO Chassidy kahi mea e hoʻoikaika ai e kōkua i ka poʻe i pilikia o kaʻohana e ʻike maikaʻi iā lākou iho.

Ma ka hoʻokaki ʻana Paʻa Barcroftua'ōleloʻo ia:

"E loaʻa ana kēia kino; Aloha wau i kēia kino a ʻae wau i kēia kino - ʻo ia ka mea aʻu e mālama ʻole nei i aloha i ke aloha a aloha ia ia no ka mea e pili ana iaʻu. "

Ke aloha nei ka wahine i kēlā me kēia, mahalo nui ʻia kēlā me kēia

Loaʻa nā kiʻi o Chassidy ma Instagram i nā manaʻo maikaʻi mai nā mea hoʻohana pūnaewele e ʻike i kona nani a me kona hilinaʻi.

@lolooo3222332 kākau:

"He nani kouʻuhane a nani kou."

@allabouteole, hoihoi

"Maikaʻi maoli kou nani, nani a nani."

ʻOiai ke kūlana o ia, ʻike ʻo Chassidy i kona waiwai pilikino, ka mea e hoʻohālikelike nei iā ia i wahine maikaʻi ʻole! He mea hoʻoikaika ʻia ʻo ia iā mākou a pau!

Ua hōʻike muaʻia kēiaʻatikala FABIOSA.FR